A mother spoke of the devastation after her baby was born alive after an abortion at 18 weeks – and lived for ten hours.
Loran Denison, 27, was pregnant with their fourth child when a test at 15 weeks showed he had Edwards syndrome.
It is a rare but very serious condition and most babies with Edwards syndrome die before or shortly after birth or at a young age.
Loran and his partner Scott Watson, 35, made the agonizing decision to have a medical abortion after being told it was unlikely to be born alive, she said.
She took a tablet and returned to the hospital after 18 weeks and four days for induction – but was amazed when her son was born breathing and alive.
And while the mother doesn’t want to prevent anyone from making the right choice for her, she said it was “torture” to watch him die.
Loran, a mother from Blackburn, Lancashire, said: “I’m glad I had so much time with him, but it also made things a lot more difficult.
“They told me that he had typical Edwards syndrome and that he would die before or shortly after he was born.
“My boy had a lion heart.”
“I thought I did the difficult when I made the difficult decision to have an abortion, but now it feels ten times worse.
“I just want other mothers to know if this happens to them.
“I had to watch his heartbeat slow down and his life drain out of him.
“You just want to keep your children alive.
“It was like torture.
“None of the doctors thought they would be born alive.
“When my partner picked him up after he was born, he said” his heart is beating “and they said” no way “.
“When I took the first pill on the sixth they said it would stop the pregnancy, the heartbeat and everything, so we expected that he would be dead when he was born.
“They didn’t look for a heartbeat before going into labor and I wish they had.
“I have no words for how awful it was.”
Edwards syndrome is a rare condition and most babies with this syndrome do not live fully or die a few hours after birth because they have an extra number 18 chromosome, according to the NHS website.
It is said that around 13 out of 100 babies with Edwards syndrome born alive will have their first birthday.
Edwards syndrome can cause a mix of symptoms that vary in different people, including learning disabilities, heart, respiratory, kidney, or gastrointestinal problems, the website says.
The extent of the disease can depend on how many extra chromosome patients have and how many cells carry the copy, making it complete, tessellated, or partial Edwards syndrome.
Loran said she learned that Kiyo Bleu has “typical Edwards syndrome.”
After Loran took a tablet on April 6th to stop the pregnancy from developing, he returned to the
Women’s and Neonatal Department at Burnley General Hospital on April 8th to induce the birth.
Loran said, “I had a medical abortion because he had Edwards Syndrome.
“We said goodbye on the 8th because I took the scheduling tray on the 6th.”
But little Kiyo Bleu Watson was born alive on April 9th at 3:00 p.m. and weighed 150 g, to the shock of his parents, Loran and Scott Watson, 35, and doctors.
They had him blessed and baptized in the hospital while he was alive.
Although Loran was glad to meet him, he said it was excruciating to wait ten hours for her newborn son to fade before he died at 2:30 a.m. on April 10.
After his death, little Kiyo Bleu went home to spend four days with Loran, a worker, Scott, and their other three children.
The family spent time with him in a special cot with a cold mattress until he had to go to a funeral home on April 14 to await his funeral.
He spent time with big brother Rocco Watson (six) and sisters Bunni Rose (three) and Romee Beau (two).
“It was awful,” she said.
“I can’t imagine how he survived.
“I don’t even have a word for how awful it feels.
“There is one person I read about who survived to 40 with Edwards Syndrome.
“Kiyo Bleu was so strong now that I wonder if he would have survived.
“His heartbeat was so strong that you could feel it.
“If I had known he would be born alive, I would probably have made a different decision.
“I thought I was doing the right thing, but now I think I did the wrong thing.
“He just looked so normal.”
Hospitals in East Lancashire NHS Trust declined to comment.