A boy born with only two percent of his brain who led doctors to believe he would live in a vegetative state made a remarkable recovery to celebrate his ninth birthday.
The brave Noah Wall developed a rare brain disease in the womb, and his parents Michelle, 49, and Rob, 55, were told by doctors that he was unlikely to talk, walk, or eat alone.
But the resilient boy has seen his brain grow from two percent to 80 percent and now dreams of one day becoming an astronaut – and has even surfed and skied.
Mother Michelle said some doctors believed Noah had no brain at all, while others believed his brain was compressed in a confined space and grew back after a shunt was attached.
Noah was diagnosed with spina bifida when a baby’s spine fails to connect early in pregnancy and he is paralyzed from the chest down.
Early scans also showed that at birth he would likely be missing a quarter of his brain because a porencephalic cyst in his head destroyed his brain.
Tragically, Noah was given the “Do Not Resuscitate” order and his parents were asked five times if they wanted to terminate the pregnancy.
The troubled parents had gone through the heartbreaking process of choosing a coffin and were already arranging a funeral for their unborn baby.
But the Miracle Dead was born on March 6, 2012 weighing 9 pounds 7 ounces, and mother Michelle said she cried when he took his first breath on his own – which meant he had a chance of survival.
Shortly after he was born, an MRI scan revealed that he was actually born with only two percent of his physical brain.
But he was celebrating his ninth birthday earlier this month (March 6) and told Mother Michelle he hoped to play soccer one day despite being confined to a wheelchair.
Noah of Carlisle, Cumbria said, “I love having people on my birthday. This birthday was different but still special.
“When I went to Newcastle Stadium, I was on the grass and I was amazed, one day I’ll run and score.”
Michelle said that Noah’s birthday party each year is emotional as it is a reminder of how far they have come and how “extraordinary” Noah’s progress has been.
She remembered the pregnancy and said it was incredibly difficult as they didn’t know if he would survive until he was born.
Michelle, mother of three, said, “As a parent, you don’t want to believe what they say, but it’s a reality. But you have to go home and tell your family that we may have to bury him.
“We always tried to be positive, even when we had such a terrible situation.”
Noah also had a rare condition called hydrocephalus, a life-threatening condition that causes fluid to build up in the brain.
As the pregnancy progressed, Noah began to develop more complications, and doctors believed that he could develop Edwards syndrome and Patau syndrome.
A baby with Edwards syndrome has three copies of chromosome number 18 instead of two, and unfortunately only 13 out of 100 babies born alive with Edwards syndrome will live after one.
Patau syndrome is a serious rare genetic disorder caused by an extra copy of chromosome 13, and only 1 in 10 children with the disorder survive a year.
Fortunately, Noah was born healthy in spite of all odds and could breathe on his own.
She added, “Noah took a life-affirming cry when he was born and tears ran down my cheeks. It was amazing. It was emotional. “
After seven weeks, he had a shunt in his head and a soft tube to drain the fluid in his neck and abdomen, and will likely require testing and surgery for his entire life.
Michelle, who works as a full-time caregiver, said, “The doctors told us that he was in a vegetative state and would not be able to communicate.
“They told us that he may not be able to speak, hear, eat, or anything else.
“But he can tell the time, he reads, he does math, he loves science. He can talk about the solar system. He has incredible dreams and even more incredible knowledge. “
Noah, who has been home schooled since childhood, has “lived a full life” and even outlined his dreams of falling in love and having children of his own.
Michelle said he was “full of personality” and she can’t wait to see what kind of man he becomes – and he’s even started using aftershave to prepare for puberty.
Although Noah has had eleven surgeries and will have a lifetime of surgery, the family says they are still determined and hopeful to achieve his dreams.
She said, “It was an absolute joy to see him grow up and see him become the unique boy he is.
“It’s amazing to me how smart he is. We’ve spent a lot of time with him and every day he does something that impresses me.
“I am very proud of him. He is my son. His goal in life is to run, it is what he wants to do. I will help him what I can and always be there for him.”
Noah is a proud sponsor of Variety, who works with disabled, sick and disadvantaged children, and The Music Man Project, which brings disabled children to the UK’s largest stages.
You can find him on Instagram here: