Little baby Sebby was just two months old when parents David and Eva noticed something was wrong with the boy.
The otherwise healthy boy from Cardiff had a head that was flattened back and sides, causing his forehead to slide forward and his ears to be misaligned.
Sebby was soon diagnosed with severe deforming plagiocephaly – a condition also known as flat head syndrome that affects about one in five babies.
The condition is not considered a major cause of concern by the NHS in most cases as it has no effects on the brain and head shape and often improves on its own over time, reports WalesOnline.
As Sebby grew, his condition became more noticeable, and David, 38 years old, and Eva, 40, became increasingly concerned about the psychological repercussions he could have in later life.
The primary treatment for the condition, which is not currently offered by the NHS, is for the child to wear a specially designed helmet to sculpt the shape of their skull.
The family decided to seek private treatment at a clinic in Bristol, where Sebby, who is now almost seven months old, was measured for a helmet that he now wears for 23 hours a day.
Treatment, which has just started and costs around £ 2,500, can take anywhere from two to five months.
An initial examination at the clinic showed that Sebby’s condition is in the “red zone,” which means that his condition is quite serious.
David said, “We are responsible parents and we don’t think it is right to ‘wait and see’, as we already know in our case. Yes, it will improve a bit, but it’s still in the red, it is irreversible and will last for a long time visible for the rest of our lives. That could have a major psychological impact on the quality of life. “
David said that while the family understand that wearing the helmet will not completely resolve the condition, they hope it will make a big difference.
“We already have the helmet and it wears it every day, we got it last year and visited the technician in Bristol just before Christmas – there was a slight improvement so we have to adjust it.”
The helmet needs to be adjusted to the changing shape of Sebby’s skull every 14 days. David said he was told that it is best for younger babies to undergo this treatment, as their skulls are most malleable by nine months of age.
And even though he wears the helmet almost all the time, David says that Sebby has adopted it.
“He’s got quite long hair right now so it can get pretty sweaty at times and we have to remove it a lot, but he wears it most of the day,” he said.
“And it’s also about psychology, if he cuts his hair short it’s really visible. They said that it will improve a little as he grows, but even then he would still be in the ‘red zone’. It wouldn’t fix “itself.”
The family was told that treatment could last anywhere from two to five months, depending on the child’s reaction. After that, the child would grow out of the intended helmet and need a new one.
David and Eva have now set up a fundraising page to continue Sebby’s treatment. We believe there is a light at the end of the tunnel so thanks to all of you. “
Donation to Sebby’s Fund here.
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